CDLS Disability
Vihaan’s genetic syndrome, Cornelia de Lange Syndrome (CdLS), does not have an approved treatment today. Thanks to recent advances in biomedical science, new approaches for treating genetic conditions, such as gene therapy, are rapidly becoming feasible. Before such treatments can be considered for Vihaan or other children with his condition we need to learn much more about SMC3-CdLS. Your donation today will help with research goals outlined here.

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The research team will target the funds for research related to SMC3-CdLS, Vihaan’s specific mutation. Donations are tax deductible.

You're giving HOPE to Vihaan's quest for a normal life

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Double your donation using company matching


(1) Search below to check if your employer can match your contribution and follow the link to your company’s matching website. 

(2) Search for the non profit, “Cornelia de Lange Syndrome”. Please check to make sure it matches EIN: 06-1057497

(3) Mention “Hope for Vihaan” in comments/notes field to indicate your donation goes for Vihaan’s medical research.

See if your employer will match your donation!

    matches your donation

    1. Select our non-profit organization by searching for "Cornelia de Lange Syndrome" or EIN: 06-1057497
    2. Mention "Hope for Vihaan" in comments/notes field to allocate your donation for Vihaan's research